AoA honors
today’s grandparents by sharing the individual stories of six
grandparents identified by the Administration on Aging’s National
Family Caregiver Support Program grantee organizations.
Frank
and Francisca Colores
Frank and Francisca Colores have participated in the United Cerebral
Palsy of Southern Arizona’s Aging Caregivers and the Exceptional
Child (ACE) project during the last two years.
Mr.
Colores was born in the U.S., and Francisca met him after she
emigrated from Mexico. Frank worked as a pipe fitter in Tucson until
he retired while Francisca made a home for their children, all of
whom have grown and left home except for Claudia who is in her early
20s.
The Colores’ took four children into their home because their mother
was involved with substance abuse and eventually left the city. They
since have adopted the children: Gabriel, aged 13; Jose, aged 11;
Jesus, aged 9; and Manuel, aged 6. As Mr. Colores said in an
interview, “it was hard for the children at first—they wanted their
mother and were sad and lonely for a while.” Now the children have
adjusted and both Mr. and Mrs. Colores and their aunt Claudia,
provide an active and loving environment.
The Colores’ family faces many challenges. Two of the children have
disabilities: one has serious hearing loss that was identified when
he was in first grade. The other grandson has a shunt to prevent
hydro encephalitis. Advocacy for services has been needed in the
school the boys attend, and the Colores have been active in learning
about special education laws and rights to services. Frank is
waiting for a liver transplant. The family’s financial resources are
stretched to the limit with four extra mouths to feed and increasing
medical expenses.
The Colores’ joined a support group for grandparents, and became
involved with the ACE program through that group. This project,
funded by the Administration on Aging’s National Family Caregiver
Support Program, enabled the Colores family to participate in a
focus group to identify family needs. As an outgrowth of the support
group, the Colores’ family is acting as a mentor to another family.
Because of his clear commitment to raising his grandchildren and
willingness to share the family story, Frank Colores was filmed in
the first ACE project video, Grandfamilies.
He was happy to tell his
family’s story as a way of providing information and support for
other grandparents. The ACE project published a Resource Guide in
part based on his strong statement identifying a “resource phone
book” as an identified need during the focus group session in which
he participated. span>
All of the Colores family recently took part in a three-day retreat
for grandparent-headed families funded by the Pima Council on Aging;
facilitated by the Kindship and Adoption Resource and Education
Family Center; and led by the ACE Family Outreach Coordinator. The
retreat enabled whole families to stay at the beautiful Tanque Verde
Guest Ranch and enjoy activities such as swimming, horseback riding,
and community gatherings. The grandparents (the majority Latino and
aged over 60) participated in wellness activities including yoga,
massage, and acupuncture.
Expert speakers discussed the challenges
that face grandparent-headed families. The retreat also included
plays and presentations that enabled the caregivers to see the value
of their work. Frank, Francisca, and the children came away happy
with the days off, rejuvenated with energy to keep on caregiving,
and with new friends and new resources.
Shig Kihara
Shig Kihara is a grandfather of three children and an infant. He
also is a caregiver for his 92 year-old mother. At the time of this
interview, Mr. Kihara just finished his weekly route as a volunteer
escort for Asian Community Center (ACC) Rides, a para-transit
program for older adults operated by the ACC in Sacramento,
California. At the same time, two of his grandchildren entertained
their great grandmother and her friends at ACC’s Drop-In Respite
program while being watched by their aunts. Both his sisters and the
grandchildren have become regular volunteers at the respite program.
His athletic build and active lifestyle obscures Mr. Kihara’s age.
At 70, he still jogs three miles every other day, lifts weights
three times a week, and plays volleyball twice a week. In 1968, he
realized that smoking had affected his health dramatically. He had a
hard time running from one side of a room to the other without
experiencing complete exhaustion. Mr. Kihara maintains his agility
and vigor to keep up with the demands of being a grandparent,
caregiver, and volunteer.
“Being a grandparent is a lot of fun. You watch your grandkids grow
in ways you never had the chance to do with your own kids,” Mr.
Kihara reflects. “With grandchildren, you see them once in a while
and really notice changes.” As a caregiver, he is one of seven
children in a tight-knit family taking turns caring for their mother
who has Alzheimer’s disease. “As a male caregiver, the most
challenging part is helping Mom with personal hygiene, like going to
the bathroom. For the grandkids, there are fewer challenges,
although keeping them occupied and engaged can be tough,” he notes.
Caregiving to two generations requires a lot of patience. Mr. Kihara
hopes that should he ever need care in the future, his family will
exercise the same patience and understanding he tries to develop. He
hopes to stay healthy enough to “pay back the elders,” and this is
why he volunteers at the respite program and the ACC Rides. “I enjoy
helping others, although before Mom got sick and started coming to
respite, I never even thought about volunteering.”
Jesse
Williams
Jesse Williams is the 82-year-old full-time caregiver of her
seven-year-old great granddaughter Dorese, whose mother passed away
during childbirth. Mrs. Williams also provides childcare to her
three-month-old great-granddaughter while the mother works a swing
shift. Rather than bemoan her situation, Mrs. Williams says she is
blessed because of the help she receives from a grandparent support
group called Grandparents Offering Love and Discipline (GOLD) that
meets once a month in her hometown of Danville, Illinois. GOLD
offers information, socialization, support, and networking for
grandparents raising their grandchildren. Mrs. Williams describes
the group as a big family. “The first time we got together we just
cried a lot,” she said. “It helps to have someone with whom to
talk.”
Mrs. Williams is the oldest member of the group and the only member
who is caring for her great grandchildren. She says the other
members of GOLD are amazed that she is still able to care for a
child but she sees things differently. “Some have four or five
grandkids they are raising. I’ve only got one.” Raising a grandchild
can be strenuous despite Ms. Williams’s positive attitude especially
when the financial concerns for aging relative caregivers are taken
into account.
The costs are astronomical for Dorese’s school supplies and food for
Dorese combined with medication for Mrs. Williams and her husband of
65 years, who was recently diagnosed with cancer. “When I found
GOLD, I jumped!” Mrs. Williams explains, “The support group tells us
where we can get free lunch for the kids and money for school
supplies.”
Mrs. Williams says GOLD also helps the grandparents get access to
needed medications so they will be around to see the kids grow up.
“I had heart surgery three years ago and I have glaucoma. A little
bottle of pills costs $100 a month!” The support group provides
assistance with housing concerns and transportation to doctors
appointments and to the support group. Although Mrs. Williams still
drives a car, she says it is important to those who need help with
transportation. Mrs. Williams knows she and grandparents raising
grandchildren don’t have to go it alone as caregivers thanks to
support groups such as GOLD.
Albert
Garcia
Albert Garcia, from Rochester, New York, assumed responsibility for
his granddaughter Renee, aged 12 almost seven years ago. Mr. Garcia
“took care of her really from birth.” The courts awarded him custody
of Renee because the parents were not able to care for her due to
drug dependency. It has not been an easy road for Mr. Garcia, but he
has stayed committed to doing his best for his granddaughter.
In
2001, Mr. Garcia attended the first Rochester Kinship Care
Conference, sponsored by Catholic Family Center’s Kinship Care
Resource Network. The staff encouraged him to accept assistance, and
helped the family obtain benefits and services including Medicaid,
Medicare and Social Security benefits, legal assistance, a new green
card, and medical care.
In
2002, Mr. Garcia wrote: “My granddaughter is reaching her teenage
years and needs me, as her grandfather, to help her through these
more challenging times. Presently we are attending a support group
and I hope to be attending some parenting classes in the near
future. Even though these last couple of years were difficult, my
granddaughter is happy and content living with me. I love my
granddaughter and she loves me. I will continue to be there for her
through the good and bad times ahead.”
Grace
Broken Leg
Grace Broken Leg, a 78-year-old great-grandmother living on the
Rosebud Reservation in South Dakota, is raising her thirteen
great-grandchildren and participates in the Native American
Caregiver Support Program. She wants the best for her
great-grandchildren and encourages their education. She is very
proud of four-year-old Alex, who just graduated from Headstart, and
will be going to school full-time this fall.
Ms. Broken Leg stresses the importance of a traditional education
and wants her great-grandchildren to understand their Native
American culture. She speaks her native Lakota language to the
children. She also stresses the Lakota cultural values and
encourages each great-grandchild live by them, including the
importance of staying active, spending time outdoors and using the
land to help feed the family. She plants and cares for her one-half
acre garden and cans the vegetables to eat with dried meat that she
prepares herself.
Winters can be harsh on the Rosebud Reservation and heating one’s
home is not an easy task. Ms. Broken Leg relies on her woodstove to
keep her home warm and the food she grows in her garden to
supplement the diet for herself and her thirteen great-grandchildren
to get through the long months.
Loretta Hollow Horn Bear Lyotte
Loretta Hollow Horn Bear-Iyotte also participates in the Rosebud
Reservation Native American Caregiver Support Program. She is 79
years old, and is raising her five grandchildren. She has recently
adopted her 14-year-old grandson through the Indian Child Welfare
Act program.
Ms. Hollow Horn Bear-Iyotte faces many challenges on a daily basis.
Never having learned to drive, she walks everywhere. Walking five
miles to accomplish a task is a common event for her. She says this
keeps her healthy. She brings her grandchildren along on her walks
and teaches them their native language along the way.
Ms. Hollow Horn Bear-Iyotte attends all the health fairs and
wellness clinics offered by the Tribe. She promotes a healthy
lifestyle in her daily activities. She wants her grandchildren to
grow up knowing the values and traditions of the Sicangu. She feels
that it is vital for the younger generation to respect their land
and carry on their Lakota culture. Understanding and knowing their
own history will help them to live long, happy self-sufficient
lives.
The Rosebud Reservation Native American Caregiver Support Program
has delivered services and resources to these two grandmothers that
assist them in caring for their grandchildren, including emotional
support needed to provide a healthy environment for the daily care
of these young children.