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Hospice
Care under-used by many Terminally Ill
Patients
Newswise — Hospice, a well-established
approach to palliative care, has enabled
countless people worldwide to die with
dignity.
Through focusing on the patient rather than
the disease, individuals can spend the last
weeks of their lives in an environment where
hospice caregivers minimize their pain,
maximize their comfort, and provide
bereavement services for loved ones and
family members.
A new study led by researchers at Harvard
Medical School, however, found that only
about half the patients diagnosed with
metastatic lung cancer discuss hospice with
their physician within 4 to 7 months of
their diagnosis.
“Many terminally-ill patients who might
benefit from hospice aren’t discussing it
with their physicians and may not be aware
of the services hospice could offer,” says
Haiden Huskamp, lead author on the study and
HMS associate professor of health care
policy.
Findings
were published in the May 25 Archives of
Internal Medicine.
Through the Cancer Care Outcomes Research
and Surveillance Consortium, the researchers
surveyed 1,517 patients diagnosed with
metastatic lung cancer.
For reasons not clear, blacks and Hispanics
were less likely to discuss hospice than
whites and Asians.
Forty-nine percent of blacks and 43 percent
of Hispanics discussed hospice with their
doctors; for whites and Asians the
percentages were 53 and 57, respectively.
Married people were also less likely than
unmarried people to have this discussion (51
percent compared with 57 percent,
respectively).
In general, the longer patients expected to
live after their diagnosis, the less likely
they were to have explored hospice care with
their doctor. However, the researchers also
found that patients tended to overestimate
how long they had to live.
For example, about 30 percent of the
patients thought that they would live up to
two years. In reality though, only about 6
percent of patients with metastatic lung
cancer will survive that long.
What’s more, patients who preferred care
that eased their pain and suffering at the
end of life over care that extended life
(roughly 50 percent of patients) were no
more likely to have discussed hospice than
patients who had the opposite preference.
“These conversations can be difficult for
everyone involved—patients, families, and
physicians,” says Huskamp.
“But discussing prognosis and end-of-life
care options in advance is essential to make
sure that patients receive care that
reflects their wishes.”
“Patients with advanced lung cancer
understandably hope that cancer treatments
can extend their lives,” notes John Ayanian,
senior author on the study and HMS professor
of medicine and health care policy.
“When these treatments are no longer
working, their doctors have an important
role to play in offering them hospice care
that will ease their symptoms as they
approach the end of life.”
This study was funded by the National Cancer
Institute.
Harvard Medical School
http://hms.harvard.edu has more
than 7,500 full-time faculty working in 11
academic departments located at the School's
Boston campus or in one of 47 hospital-based
clinical departments at 17
Harvard-affiliated teaching hospitals and
research institutes.
Those affiliates include Beth Israel
Deaconess Medical Center, Brigham and
Women's Hospital, Cambridge Health Alliance,
Children's Hospital Boston, Dana-Farber
Cancer Institute, Forsyth Institute, Harvard
Pilgrim Health Care, Hebrew SeniorLife,
Joslin Diabetes Center, Judge Baker
Children's Center, Massachusetts Eye and Ear
Infirmary, Massachusetts General Hospital,
McLean Hospital, Mount Auburn Hospital,
Schepens Eye Research Institute, Spaulding
Rehabilitation Hospital, and VA Boston
Healthcare System.
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