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AFB Survey
finds Drug Labeling puts people with Vision
Loss at serious medical risk
Legally blind parents almost miss dangerous
pharmacy error in child's medication; young
man is hospitalized because he could not see
insulin labels; small print on labels causes
grandmother to confuse medications
WASHINGTON, Jan. 13
/PRNewswire-USNewswire/ -- Would you feel
safe taking a dose of medication if you were
not fully confident you were taking the
correct amount?
What
would you do if you couldn't read important
drug information on prescription bottles or
package inserts?
For the more than 20 million people living
with vision loss, not being able to read
drug container labels and package inserts is
a scary reality and a significant public
health challenge.
A recent survey by the American Foundation
for the Blind (AFB) found that people with
vision loss were unable to read necessary
instructions supplied with prescription and
over-the-counter medications, often leading
to taking the wrong medication, taking the
improper dosage of a medication, and in some
extreme cases, becoming ill or having to
visit the emergency room.
"Not having access to the information on
prescription labels is extremely dangerous
for people with vision loss," said
Mark Richert, Director of Public
Policy at AFB.
"We need policy makers, retailers, and
others to work together to ensure that
prescription labeling is accessible, and
that all people can take their medication
effectively, independently, and most
importantly, safely."
The Access to Drug Labels Survey explored
the personal stories of people who had
trouble reading prescription or
over-the-counter medication information.
It was conducted as part of
AFB's Rx
Label Enable Campaign, an
initiative to ensure that people with vision
loss have access to the vital information
available to all consumers via prescription
labeling and related documentation.
Data from the survey indicated that the
inability to access necessary instructions
supplied with prescription and
over-the-counter medications often resulted
in people with vision loss:
taking the wrong medication;
becoming ill due to taking the wrong
medication or taking the incorrect dosage of
medication;
visiting the emergency room or
hospitalization;
depending on sighted companions or complete
strangers to convey necessary drug
information.
Below are some specific examples of
participants' experiences:
Parents unable to detect pharmacy error made
to their infant's medication
A husband and wife who are both legally
blind are parents of an infant and are
unable to read drug labeling information.
They had been given the wrong medication for
their baby by a pharmacy and the only reason
they figured this out was because they had
been prescribed the medication on a previous
occasion and the packaging was so different
that they asked a sighted neighbor who
happened to be visiting to read the label.
The mistake made by the pharmacy could have
been lethal.
Young man has to visit the emergency room
because he could not read insulin label
A 20-year-old respondent explained he had
received the wrong dosage of insulin due to
not being able to read the label.
The prescription was for 50-unit insulin
syringes and the pharmacy filled it with
100-unit syringes. He passed out from
hypoglycemia and ended up in the hospital.
65-year-old grandmother confuses blood
pressure and antidepressant medication
A respondent who has low vision regularly
takes prescriptions with labels that have
very small print.
She often confuses blood pressure medicine
with stomach or antidepressant medication.
She has developed her own method of labeling
her pill bottles in an effort to avoid
further confusion.
Even though people of all ages with
different degrees of vision loss are
affected by the negative consequences of
inaccessible drug labeling information,
there are currently no federal or state
requirements for the format of information
on prescription labels.
"While some assistive devices can help
people with vision loss manage medications,
these technologies are not widely
available," said Stacy Kelly,
Ed.D., Policy Research Associate, AFB.
"It is our hope that as Congress takes up
healthcare reform legislation this year, one
of its priorities will be to ensure that
prescription drug labels and instructions
are accessible to people with vision loss."
For the full report, including other
personal stories, visit
www.afb.org/druglabelreport.
The American Foundation for the Blind (AFB)
is a national nonprofit that expands
possibilities for people with vision loss.
AFB's priorities include broadening access
to technology; elevating the quality of
information and tools for the professionals
who serve people with vision loss; and
promoting independent and healthy living for
people with vision loss by providing them
and their families with relevant and timely
resources.
AFB is also proud to house the Helen Keller
Archives and honor the more than forty years
that Helen Keller
worked tirelessly with AFB. For more
information visit us online at
www.afb.org.
AFB has embarked on the Rx Label Enable
campaign to ensure that people with vision
loss have ready access to the vital
information available to all consumers via
prescription labeling and consumer
medication information, enabling them to
take medications safely, effectively, and
independently.
AFB is reaching out to all stakeholders,
including consumers experiencing vision
loss, policymakers, federal regulators,
doctors, the pharmaceutical industry,
retailers, assistive technology providers,
and public and private insurers to promote
solutions, build consensus, and take action.
For more information visit AFB at
www.afb.org/labels.
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